To mark the occasion of Rare Disease Day 2017, Rare Diseases International, the Global Alliance of Rare Disease Patients, in partnership with the BLACKSWAN Foundation, the Swiss Foundation for Research on Orphan Diseases, and EURORDIS-Rare Diseases Europe, is holding a “Rare Diseases International Policy Event” on 10th February at Campus Biotech, in Geneva, Switzerland.

The event is the first of its kind to be organized in Geneva and will gather international experts in the fields of public health, human rights, epidemiology, scientific research and patient advocacy to explore together avenues to address inequality and improve access to health for the more than 300 million people living with a rare disease around the world today.
IFPMA has been invited to participate in a panel discussion on improving access to diagnostics and therapies, and will be represented by the Chair of IFPMA’s working group on rare diseases, Kevin Loth, who is Vice President of Corporate Affairs and Policy at Celgene.

Full agenda is available here: http://www.rarediseasesinternational.org/rare-diseases-international-policy-event/